Tuesday, May 20, 2014

Update

We just completed the 6 weeks of Clobetesol we set out to do. Sadly, we are seeing no growth. About 4 weeks into the therapy, Stanford recommended we add Retin A to her treatment plan.  Stanford explained it like this: Clobetesol suppresses the T cells and Retin A distracts them.

So now, 2 weeks into treatment with both medications, her head is getting red and irritated, but still no growth. She even had a little open sore last night; that broke my heart.

And, to add salt in our wound, she got a new spot last night right on the top of her head.

I don't really know how I'm feeling.  I feel peace that we are doing all we can to help her, and if she still loses all her hair, at least I can know we did what we could.

I feel irritated at how drawn out this has been. We have been chasing this for almost 2 years now. If her hair is going to fall out regardless of what we do, I'm ready for that to just happen and we can be done with all the treatment.

But of course, the last thing I want is for my baby girl to have no hair. So we press on.

I have a call into Stanford, so we'll wait and see what they say. At what point do we stop treatment?

I'm trying not to get too discouraged. I'm hoping that the growth will still come; that it is just taking longer because we aren't using the Minoxidil this time around.

I have been in contact several women that also suffer from Alopecia and each conversation has been incredibly encouraging. They lead happy, normal, successful lives. They are confident in their identity in Christ, not their identity in their appearance.  I know Charlotte will be fine with our without hair. We just love her so much.

Charlotte is surrounded by people that love her for who she is, not what she looks like. We know she is a happy, well-balanced little girl. We are teaching her that God made her special and she is beautiful no matter how much hair she has or doesn't have. But man, it is so hard to watch your beautiful little girl's sweet blonde hair fall in the trash. Most days I have complete peace about the situation, but sometimes it just hits me so hard and I have to take a few minutes and cry and grieve for her. 











And of course this beautiful face!